Our team

IPOPI team group photo

How we lead

IPOPI’s governance model brings together strategic leadership, medical expertise, and operational coordination. Our structure ensures that every decision we take is grounded in transparency, scientific guidance, and a strong commitment to the global PID community.

Each group plays a distinct and complementary role, working together to guide, validate, and deliver our mission worldwide.

Executive Committee

  • Chair Martine Pergent Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)
  • Vice Chair Bruce Lim Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)
  • Treasurer Otilia Stanga Romanian Association for Patients with Primary Immunodeficiencies (ARPID)
  • Whitney Ayoub Goulstone ImmUnity Canada
  • Cynthia Olotch PIDs Kenya
  • Roberta Anido Asociación Ayuda al Paciente con Immunodeficiencia Primaria (AAPIDP)
  • Tracy Shaw Immune Deficiency Foundation (IDF)
  • Dimas Adhi Sugiharto Perhimpunan Pasien Imunodefisiensi Primer Indonesia (PPIPI)
  • Dr Nizar Mahlaoui (Ex Officio) Chair of Medical Advisory Panel
  • Prof Martin Van Hagen (Ex Officio) Vice-Chair of Medical Advisory Board
  • Executive Director Johan Prevot (Ex Officio)

Staff

Members

  • Regulator Dra. Manuela Mura
  • Ethicist Dr. Peter Jawroski
  • Nursing Nurse Mary Louise Daly
  • Plasma industry/access specialist Professor Albert Farrugia
  • Advanced therapies industry specialist Professor Bobby Gaspar
  • Ethicist Professor James Taylor
  • Academic ATMP specialist Professor Dr. Frank Staal
  • Health economist Professor Dr. Cornelis Boersma
  • Plasma Industry market data specialist Mr Matthew Hotchko
  • Immunologist Dr. Olaf Neth

Get involved

Explore how our leadership drives impact worldwide and discover how
you can take part in our mission.

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