Our journey
IPOPI was founded in 1992 by patient representatives and medical experts who recognised the urgent need for a global organisation dedicated to primary immunodeficiencies. At a time when many patients remained undiagnosed and treatments were limited or inaccessible, IPOPI emerged to unite national patient groups, support families, and advocate for better care.
Since then, we have grown into a worldwide alliance working across continents to improve diagnosis, strengthen health systems, and ensure that PID patients receive the recognition and support they deserve.
Tracking our impact
Explore IPOPI’s annual reviews to learn more about our activities, achievements, and global impact.
Foundations and Early Advocacy
Bob LeBien humbly accepts the recognition of becoming the first IPOPI Honorary Life President following the end of his second mandate as IPOPI Chairperson.
Building Global Reach
Immunoglobulins were removed from the World Health Organization (WHO) List of Essential Medicines (EML).
Foundations and Early Advocacy
David Watters becomes IPOPI Executive Director. David had rendered his professional services to IPOPI for some years on a project basis. He hired administrative staff and started to professionalize the management of IPOPI.
A poster highlighting the dangers of late PID diagnosis was presented at the European Rare Disorders Conference in Luxembourg in June
Foundations and Early Advocacy
Bob LeBien humbly accepts the recognition of becoming the first IPOPI Honorary Life President following the end of his second mandate as IPOPI Chairperson.
As we move forward, IPOPI will continue driving global advocacy, strengthening partnerships, and supporting innovation to improve the lives of PID patients everywhere.— Person who said it
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Discover how our work today builds on decades of progress and how
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