NMO Toolkit
Brings together practical guidance, resources and tools to help National Member Organisations build capacity, support their communities and advance advocacy initiatives.
Strategy and governance
Build a stronger and more sustainable organisation.
This section includes practical guidance and tools to support strategic planning, governance, leadership development and organisational capacity-building for NMOs.
Awareness
Learn how a national primary immunodeficiencies (PID) patient organisation may apply to become an IPOPI member by reading the document below.
Advocacy
Strengthen your advocacy activities with resources and guidance that support engagement with policymakers, healthcare stakeholders and the wider PID community.
Education
Discover educational resources, learning materials and training opportunities developed to support NMOs, patients, caregivers and healthcare professionals.
Leaflets
Informative brochures covering various aspects of Primary Immunodeficiencies (PIDs), including symptoms, treatments, and patient care.
These are available in multiple languages. Is you language missing? Reach out to IPOPI at [email protected] and help us make these resources available for your community.
Mini-documentaries
Short video films that provide information about Immunodeficiencies, featuring insights from patients and healthcare professionals. They highlight important issues faced by the PID community, enhance knowledge, and foster greater stakeholder engagement on specific topics.
Communication and media
Find practical communication tools, templates and media resources to help your organisation communicate effectively, raise awareness and engage with your community.
- Basic tips for mobile videography
- How to pitch your organisation
- How to choose a social media channel
- How to talk to media
- How to create a social media post
- How to launch digital campaign
Best practices
Community building
Resources and guidance to help your organisation strengthen community engagement, build partnerships and grow a supportive network for people living with primary immunodeficiencies.
Patient support
Practical tools and materials to help NMOs deliver effective patient support services, improve access to information and strengthen peer connections.
Fundraising
Guidance and templates to support sustainable fundraising activities, donor engagement and financial planning for national member organisations.
Research data collection
Tools and resources to support NMO involvement in research initiatives, data collection and collaboration with the wider PID research community.