Global
mission
statement

Improving the lives of people living
with primary immunodeficiencies
worldwide. Through advocacy,
collaboration, and patient-centred
action.

+75

Countries reached

+100

National member organizations

Millions

Patients reached worldwide

Improving Global Access to Early PID Diagnosis

Focus areas

Awareness among healthcare professionals
Newborn screening initiatives
Access to diagnostic tools

Strengthen Recognition of Primary Immunodeficiencies

Focus areas

Awareness campaigns
Education and advocacy
Recognition of PIDs as a public health priority

Supporting Patient-Centred Healthcare Policies

Focus areas

Patient representation
Equitable healthcare policies
Collaboration with policy makers

Promote Better Access to Treatments and Care

Focus areas

Access to essential therapies
Sustainable healthcare pathways
Improved standards of care

Strengthen Collaboration Across Countries and Stakeholders

Focus areas

International partnerships
Knowledge sharing
Global collaboration initiatives

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