Advocating for equitable access to immunoglobulin replacement therapy and supporting evidence-based policy frameworks worldwide.
Ongoing
5th dezembro 2025
Access to Immunoglobulin Therapy
Advocating for equitable access to immunoglobulin replacement therapy and supporting evidence-based policy frameworks worldwide.
Ongoing projects
Ongoing
Global
PID Life Index 2.0
Updating and expanding our flagship tool for measuring access to diagnosis and treatment across countries. The enhanced version includes new indicators for digital health access, mental health support, and patient quality of life.
Ongoing
Europe
Mental Health and Well-being Study
International collaborative study examining mental health challenges, coping strategies, and support needs for people living with PIDs and their caregivers.
Ongoing
Europe
Home Therapy Outcomes Research
Comparing outcomes, quality of life, and patient preferences between home-based and hospital-based immunoglobulin replacement therapy.
Ongoing
Global PID Awareness Campaign
A coordinated international effort to raise awareness of primary immunodeficiencies among healthcare professionals, policymakers, and the public.